Navigating Life with Amyotrophic Lateral Sclerosis

2. Revised Auflage 2026
ISBN: 978-0-19-776732-0
Verlag: Oxford University Press Inc

Buch, Englisch, 328 Seiten, Format (B × H): 141 mm x 209 mm, Gewicht: 349 g

Reihe: Brain and Life Books

Navigating Life with Amyotrophic Lateral Sclerosis is a compassionate and practical guide for individuals living with ALS, as well as their families and caregivers.

Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. Affecting approximately 5,600 Americans every year, receiving the diagnosis of ALS can be devastating.

Now in its second edition, this essential resource offers clear, accessible answers to the many questions that arise from diagnosis through the progression of the disease. Written by a neurologist with decades of clinical experience and a caregiver who supported a parent with ALS, the book combines medical expertise with personal insights. It covers the full spectrum of ALS care-from understanding symptoms and the diagnostic process to navigating daily challenges, exploring assistive technologies, and making informed decisions about respiratory support and end-of-life care. New sections also explain the latest research, including the role of genetic mutations and other genetic factors, and the development of new treatments, in language that is easy to understand. Organized in a user-friendly question-and-answer format, the book includes patient stories, caregiver perspectives, and expert commentary.

With a glossary, helpful resources, and insightful patient vignettes, Navigating Life with Amyotrophic Lateral Sclerosis empowers patients and their support networks to make informed choices and maintain quality of life throughout the ALS journey.

Autoren/Hrsg.

Bromberg, Mark

Banks Bromberg, Diane

Inhaltsverzeichnis

- Foreword

- Dedication

- About the Brain and Life® Books Series

- Chapter 1 - Introduction

- Chapter 2 - ALS Origins

- Chapter 3 - The Diagnosis of ALS

- Chapter 4 - Causes of ALS

- Chapter 5 - Motor Progression in ALS

- Chapter 6 - Nonmotor Features of ALS

- Chapter 7 - Management and Treatment of ALS

- Chapter 8 - Living with ALS

- Chapter 9 - Nutrition and ALS

- Chapter 10 - Breathing and ALS

- Chapter 11 - Communication and ALS

- Chapter 12 - Mobility and ALS

- Chapter 13 - Managing ALS Symptoms

- Chapter 14 - The Caregiver and ALS

- Chapter 15 - The End Stages of ALS

- Chapter 16 - Planning Ahead

- Chapter 17 - Research in ALS

- Glossary

- About the Authors

- About Brain and Life® and the American Academy of Neurology

- Index

Über Autor(innen)

Mark Bromberg, MD, PhD, FAAN, is an Emeritus Professor of Neurology at the University of Utah. He received a doctoral degree in Neurophysiology from the University of Vermont and his medical degree, neurology residency training, and fellowship in clinical neurophysiology and neuromuscular diseases from the University of Michigan. He has been a faculty member at the University of Utah since 1994. His primary clinical interest is ALS, and he is active in clinical trials and research in ALS. He has published over 140 articles, 30 book chapters, edited or co-edited 4 books, and written 2 books.

Diane Banks Bromberg, JD, earned her law degree from the University of Utah and practices commercial real estate law. She cared for her mother, who had ALS.