Unshared Care

Parents and Their Disabled Children
1. Auflage 2026
ISBN: 978-1-041-37832-7
Verlag: Routledge

Buch, Englisch, 268 Seiten, Format (B × H): 145 mm x 222 mm, Gewicht: 415 g

Reihe: Routledge Revivals

The vast majority of the 100,000 or so children with serious mental or physical disabilities in Britain in 1980s lived at home with their families. A series of in-depth interviews carried out with several parents enabled the author to describe the extensive physical, practical, and emotional demands made on those looking after their disabled child at home. In their own words, parents reported how and when they learnt about their child’s disability; the sheer physical work and mental effort of daily care which more often than not fell unremittingly on the child’s mother; the feelings of isolation and the lack of information which were often relieved only by talking with parents of other disabled children.

First published in 1983, Unshared Care examines the community services, revealing that from the parents’ point of view, the rhetoric of public concern was only barely matched by the practical support available. It shows that services were, all too often, insufficiently specialized and lacking in coherence. Professional practices created further barriers to the receipt of help. As a result, parents felt that they and their children received far less help than they needed or deserved.

This book will be of special interest to social workers, teachers, and medical and other professionals, as well as to the parents of children with disabilities.

Zielgruppe

Postgraduate

Autoren/Hrsg.

Glendinning, Caroline

Fachgebiete

• Sozialwissenschaften Politikwissenschaft Regierungspolitik Sozialpolitik
• Sozialwissenschaften Soziologie | Soziale Arbeit Soziale Gruppen/Soziale Themen Invalidität, Krankheit und Abhängigkeit: Soziale Aspekte
• Sozialwissenschaften Soziologie | Soziale Arbeit Soziale Arbeit/Sozialpädagogik
• Sozialwissenschaften Soziologie | Soziale Arbeit Soziologie Allgemein

Inhaltsverzeichnis

Introduction Part 1: Disabled children and their families 1. The children and their families 2. Discovering the disability 3. Caring from day to day: living with a severely disabled child 4. Effects on the parents 5. Sisters and brothers, family life and wider social networks Part 2: Services and support: the views of a group of consumers 6. Health care in hospital and the community 7. Social services and social work 8. School and education 9. Voluntary organisations and services 10. Financial help: the attendance allowance 11. Financial help: the family fund 12. Disabled children and society Appendix: Research methods used in the study

Über Autor(innen)

Caroline Glendinning is Emeritus Professor of Social Policy at the School for Business and Society, University of York, and an Academician of the Academy of Learned Societies in the Social Sciences. Caroline was Professor of Social Policy in the Social Policy Research Unit from 2004–2014. She led SPRU’s Department of Health funded research programme ‘Choice and Independence Across the Lifecourse’ from 2004–2011. From 2009–2014 she was Associate Director of the NIHR School for Social Care Research and lead SSCR’s Research Programme in SPRU. Caroline was Chair of the UK Social Policy Association, 2008–2011.