Advocacy in Neurology

Erscheinungsjahr 2019
ISBN: 978-0-19-879603-9
Verlag: OXFORD UNIV PR

Buch, Englisch, 396 Seiten, Format (B × H): 156 mm x 234 mm, Gewicht: 614 g

Advocacy is a broad term that covers activities aimed at increasing attention, awareness, information, nursing, treatment, and support to improve the outcome of patients. These actions can be focused directly towards patients or indirectly via third parties. Although advocacy is present in all medical specialties, neurology in particular finds itself in need of strong advocacy tools as the diagnosis, treatment, long-term care and associated resource, and social issues have become increasingly complex. While some physicians implicitly or explicitly act as advocates, there is a lack of holistic research in order to clarify the meaning of advocacy along with concrete methods and strategies.

Advocacy in Neurology provides an integrated approach to the concept of advocacy in neurology. Structured in five sections, the book begins by explaining the term "advocacy" in general before elaborating on the areas of interest within neurology. The text goes on to offer concrete strategies and tools for clinicians to deploy advocacy in their daily work, and then discusses specific neurological diseases to point out and explain where advocacy is, or could be, beneficial. The book ends with an outlook, presentation of results, and an ending conclusion.

Advocacy in Neurology offers a practical perspective on advocacy activities in neurology, aiming to show when and why they are important for neurology.

Autoren/Hrsg.

Grisold, Wolfgang

Struhal, Walter

Grisold, Thomas

Fachgebiete

• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Klinische und Innere Medizin Neurologie, Klinische Neurowissenschaft

Inhaltsverzeichnis

- Section 1: What is advocacy?

- 1: Wolfgang Grisold, Walter Struhal, and Thomas Grisold: What is advocacy?

- 2: Thomas Grisold and Oliver Lukitsch: Taking an epistemological perspective on advocacy

- 3: Wolfgang Maderthaner and Wolfgang Grisold: Advocacy in history and culture

- 4: Jan J. Heimans: Ethical issues in neurology

- 5: Tissa Wijeratne, Essie Low, and Christopher Neil: Physician, autonomy, and pharmaceutical industry

- 6: Mohammad Wasay: Advocacy, campaigning, lobbying: Good or bad?

- Section 2: Why is advocacy needed?

- 7: Wolfgang Grisold: Knowledge and science is not enough

- 8: Mohammad Wasay: Perspectives on advocacy of medical doctors

- 9: Hanneke Zwinkels: Advocacy and the perspective of (neurology) nursing

- 10: Helen Bulbeck: Patient and caregiver advocacy

- 11: Françoise Van Hemelryck: Patient involvement in European cancer societies: The example of ECCO - the European CanCer Organization

- 12: Mustapha El Alaoui Faris: Advocacy for neurology in migrants

- 13: Apoorva Pauranik: Advocacy for neurology: Local, regional, national

- 14: Raad Shakir: Advocacy in the international arena

- 15: Jes Olesen and Frédéric Destrebecq: Working with others, the lesson of the European Brain Council

- 16: Richard Pichler: SOS children's villages: Re-discovering advocacy to increase relevance and impact. A high level case study

- Section 3: What tools can be used for advocacy?

- 17: Walter Struhal and Thomas Grisold: Project management techniques for advocates

- 18: Wolfgang Grisold, Anna Klicpera, and Thomas Grisold: International advocacy: Case studies and lessons learnt

- 19: Birgit Kofler: Using PR tools for advocacy

- Section 4: Advocacy in different neurological diseases

- 20: Tissa Wijeratne, Sheila Crewther, and David Crewther: Advocacy for stroke

- 21: Christoph Thalheim: Two decades of patient advocacy in Multiple Sclerosis: The success story of the European MS Platform

- 22: Albert C. Ludolph: Advocacy in amyotrophic lateral sclerosis

- 23: Elaine C. Jones and John D. England: Neuromuscular disorders and advocacy

- 24: Francesca Mancini and Carlo Colosimo: Advocacy for movement disorders

- 25: Riccardo Soffietti, Christine Marosi, Roberta Rudà, and Wolfgang Grisold: Advocacy for brain tumours

- 26: Gorazd B. Stokin: Advocacy in dementia

- 27: Fritz Zimprich: Advocating for orphan diseases in neurology

- 28: David Oliver: Palliative care

- 29: Jules C. Beal and Solomon L. Moshe: Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy

- 30: Timothy J. Steiner and Jes Olesen: Advocacy for patients with headache

- 31: Ligia Onofrei and A. Gordon Smith: Advocacy for patients with neuropathic pain

- Section 5: Outlook, follow-up, results, ending, conclusion, and debriefing

- 32: Wolfgang Grisold and Thomas Grisold: Continuation or ending and 'debriefing'

- 33: Wolfgang Grisold, Walter Struhal, and Thomas Grisold: Results, outlook, and goals of this book

Über Autor(innen)

Professor Wolfgang Grisold is a Neurologist at Ludwig Boltzmann Institute for Experimental and Clinical Traumatology, Vienna, Austria. His main research interests are in general neurology, neuro-oncology, palliative care, and neuromuscular disease. He has experience in hospital/institutional neurology and also general neurology and neuromuscular disease in private/office settings.

Associate Professor Walter Struhal is a Neurologist and Chair of the Department of Neurology at University Clinic Tulln, Karl Landsteiner University of Health Sciences, Tulln, Austria. His main research interests are in neurointensive care medicine, neurodegenerative diseases, and the autonomic nervous system, as well as medical postgraduate education.

Dr Thomas Grisold is a Research and Teaching Associate at Vienna University of Economics and Business, Vienna, Austria and he is studying a PhD in business and management. His main research interests are around the concept of organizational unlearning which refers to periods when organizations intentionally seek to get rid of established knowledge structures in order to create and implement new ones. Having a background in cognitive science, he aims to complement management research with interdisciplinary perspectives from neuroscience and philosophy.