Real-World Research to Improve Dementia Care

Embedding Pragmatic Trials of Non-Drug Interventions
Erscheinungsjahr 2026
ISBN: 978-0-443-40700-0
Verlag: Elsevier Science

Buch, Englisch, 300 Seiten, Format (B × H): 152 mm x 229 mm, Gewicht: 449 g

Real-World Research to Improve Dementia Care: Embedding Pragmatic Trials of Non-Drug Interventions addresses the urgent need for effective care strategies for the over 50 million individuals living with Alzheimer's disease and related dementias. This insightful book introduces embedded, pragmatic trials as a way to bridge the gap between clinical research and everyday practice, emphasizing collaboration among healthcare systems, researchers, and communities. Through a series of chapters, the book explores partnership strategies, ethical considerations, and the selection of meaningful outcome measures, all aimed at enhancing dementia care. The authors present case studies that showcase successful interventions and innovative practices across care settings.

By highlighting both the challenges and solutions in dementia care, this book serves as a vital resource for healthcare professionals and researchers. It advocates for a compassionate approach that values the voices of individuals living with dementia, ultimately aiming to improve their quality of life.

Autoren/Hrsg.

Harrison, Jill

Fachgebiete

• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Klinische und Innere Medizin Neurologie, Klinische Neurowissenschaft

Inhaltsverzeichnis

1. Introduction to Embedded Pragmatic Trials to Improve Dementia Care
2. Engaging Partners to Improve Dementia Care
3. Building Research and Community Partnerships in Home Care and Hospice to Conduct Pragmatic Trials
4. Research Methods in Embedded Pragmatic Trials
5. Addressing Disparities and Inequities in Research to Improve Dementia Care
6. Selecting Measures that Matter to People Living with Dementia and Care Partners
7. Anticipating and Addressing Ethical and Regulatory Challenges in Embedded Pragmatic Trials Involving People Living with Dementia
8. Implementing Interventions to Improve Dementia Care: Understanding Mechanisms of Action in Embedded Pragmatic Clinical Trials in Home and Community Settings
9. Emerging Technologies: The Future of Dementia Research
10. Introduction to Case Studies
10a. Case Study 1: Music and Memory: A Pragmatic Trial for Nursing Home Residents With Alzheimer's Disease
10b. Case Study 2: Improving How People Living with Dementia are Selected for Care Coordination: Pragmatic Clinical Trial Embedded in an Accountable Care Organization
10c. Case Study 3: Overcoming Challenges to Recruiting Caregivers in Dementia Care Research
10d. Case Study 4: Implementation of Dementia-Friendly and Age-Friendly Health System Programs across Settings of Care
10e. Case Study 5: INTERACT: Large Scale Research Partnerships with Long-Term Care Communities
10f. Case Study 6: Strategies Associated with COVID-19 Vaccine Coverage among Nursing Home Staff
10g. Case Study 7: A Cluster-randomized Trial of Adjuvanted Versus Nonadjuvanted Trivalent Influenza Vaccine in 823 US Nursing Homes
10h. Case Study 8: Detection of Dementia in the Emergency Department
10i. Case Study 9: ALIGN: Case Study in De-prescribing for Dementia
10j. Case Study 10: The PROTECT Trial: Partnering with Nursing Homes to Reduce Infections
11. Resources to Design, Fund, and Conduct a Pragmatic Trial to Improve Dementia Care
12. Conclusion

Über Autor(innen)

Harrison, Jill
Jill Harrison, PhD, is an Executive Director at the NIA IMPACT Collaboratory and an Associate Professor of Practice in the Department of Health Services, Policy and Practice at Brown University School of Public Health. Prior to joining the IMPACT Collaboratory, Dr. Harrison served as the Director of Research for an international non-profit advocacy organization, founded by a patient and focused on implementing person-centered care initiatives in healthcare organizations in 27 countries. She served on the advisory panel for patient engagement at the Patient-Centered Outcomes Research Institute (PCORI) and was the principal investigator of a PCORI Engagement Award about how patient-family advisory councils engage in research. Her research interests include: pragmatic trials in real-world settings, engaging residents of long-term care communities as evaluators of care quality, developing culturally congruent person-centered care approaches in healthcare systems, and organizational cultural change. She completed her post-doctorate at Brown University in health services research.