Parents with Intellectual Disabilities

1. Auflage 2010
ISBN: 978-0-470-77295-9
Verlag: John Wiley & Sons

Buch, Englisch, 304 Seiten, Format (B × H): 157 mm x 235 mm, Gewicht: 576 g

The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter - Presents a unique, pan-disciplinary overview of this growing field of study
- Offers a human rights approach to disability and family life
- Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006)
- Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability

Autoren/Hrsg.

Llewellyn, Gwynnyth

Traustadottir, Rannveig

McConnell, David

Sigurjonsdott, Hanna Bjorg

Weitere Mitwirkende

Taylor, Steven

Inhaltsverzeichnis

List of Contributors ix

Foreword xiii
Steven J.Taylor

Acknowledgments xvii

Introduction 1
Gwynnyth Llewellyn, Rannveig Traustadóttir, David McConnell, and Hanna Björg Sigurjónsdóttir

Part I Family and Community Life 15

1. Becoming a Mother – Becoming a Father 17
Rachel Mayes and Hanna Björg Sigurjónsdóttir

2. Looking Back on Their Own Upbringing 33
Gwynnyth Llewellyn and David McConnell

3. Family Within a Family 49
Hanna Björg Sigurjónsdóttir and Rannveig Traustadóttir

4. Children and Their Life Experiences 63
Jytte Faureholm

5. Understanding Community in the Lives of Parents with Intellectual Disabilities 79
Gwynnyth Llewellyn and Marie Gustavsson

6. Citizenship and Community Participation 95
Brigit Mirfin-Veitch

7. Parenting and Resistance: Strategies in Dealing with Services and Professionals 107
Rannveig Traustadóttir and Hanna Björg Sigurjónsdóttir

Part II Human Services Enabling and Disabling Parents with Intellectual Disabilities 119

8. Parenting Education Programs 121
Maurice Feldman

9. Supported Decision Making for Women with Intellectual Disabilities 137
Sue McGaw and Sue Candy

10. Turning Policy Into Practice 155
Beth Tarleton

11. Caught in the Child Protection Net 171
David McConnell and Hanna Björg Sigurjónsdóttir

12. Turning Rights into Realities in Québec, Canada 189
Marjorie Aunos, Laura Pacheco, and Katherine Moxness

13. Supporting Mothers’ Community Participation 205
David McConnell and Gwynnyth Llewellyn

14. Advocacy for Change: “The Final Tool in the Toolbox?” 225
Linda Ward and Beth Tarleton

Conclusion: Taking Stock and Looking to the Future 241
David McConnell, Gwynnyth Llewellyn, Rannveig Traustadóttir and Hanna Björg Sigurjónsdóttir

Index 263

Über Autor(innen)

Gwynnyth Llewellyn is Professor and Dean of the Faculty of Health Sciences, University of Sydney, and Director of the Australian Family and Disability Studies Research Collaboration. Professor Llewellyn's work led to the world's first national strategy to support parents with learning difficulties and promote a healthy start to life for their young children.

Rannveig Traustadóttir is Professor and Director of the Centre for Disability Studies in the School of Social Sciences, University of Iceland. She has been one of the leaders in developing Disability Studies as a scholarly field in the Nordic countries and is the former president of The Nordic Network on Disability Research.

David McConnell is Professor in the Faculty of Rehabilitation Medicine, University of Alberta. Professor McConnell has been conducting research in the field of parents and parenting with intellectual disabilities in Australia for over 15 years. He is now expanding his research program in Canada.

Hanna Björg Sigurjónsdóttir is an Assistant Professor at the University of Iceland. She has conducted collaborative research with parents with intellectual disabilities for 15 years. Together with Rannveig Traustadttir she has published Contested Families: Parents with Intellectual Disabilities and Their Children (1998) and Invisible Families: Mothers with Intellectual Disabilities and Their Children (2001).