Telling Genes

The Story of Genetic Counseling in America
Erscheinungsjahr 2012
ISBN: 978-1-4214-0668-8
Verlag: Johns Hopkins University Press

Buch, Englisch, 248 Seiten, Format (B × H): 152 mm x 229 mm, Gewicht: 412 g

The history of contemporary genetic counseling, including its medical, personal, and ethical dimensions.

Winner of the CHOICE Outstanding Academic Title of the Choice ACRL

For sixty years genetic counselors have served as the messengers of important information about the risks, realities, and perceptions of genetic conditions. More than 2,500 certified genetic counselors in the United States work in clinics, community and teaching hospitals, public health departments, private biotech companies, and universities. Telling Genes considers the purpose of genetic counseling for twenty-first century families and society and places the field into its historical context.

Genetic counselors educate physicians, scientific researchers, and prospective parents about the role of genetics in inherited disease. They are responsible for reliably translating test results and technical data for a diverse clientele, using scientific acumen and human empathy to help people make informed decisions about genomic medicine.

Alexandra Minna Stern traces the development of genetic counseling from the eugenics movement of the early twentieth century to the current era of human genomics. Drawing from archival records, patient files, and oral histories, Stern presents the fascinating story of the growth of genetic counseling practices, principles, and professionals.

Autoren/Hrsg.

Stern, Alexandra Minna

Fachgebiete

• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Medizin, Gesundheitswesen Geschichte der Medizin
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Medizin, Gesundheitswesen Medizinische Ethik
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Medizin, Gesundheitswesen Public Health, Gesundheitsmanagement, Gesundheitsökonomie, Gesundheitspolitik
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Vorklinische Medizin: Grundlagenfächer Humangenetik
• Interdisziplinäres Wissenschaften Wissenschaften: Allgemeines Geschichte der Naturwissenschaften, Formalen Wissenschaften & Technik

Inhaltsverzeichnis

Acknowledgments
Introduction
1. History: Genetic Counseling Develops
2. Genetic Risk: An Evolving Calculus
3. Race: Tense and Troubled Relations
4. Disability: The Dynamics of Difference
5. Women: Transforming Genetic Counseling
6. Ethics: Shades of Gray in Genetic Counseling
7. Prenatal Diagnosis: The Handmaiden of Contemporary Genetic Counseling
Conclusion
Appendixes
A. Archival Materials Consulted
B. Interviewees
C. Master's Degree Genetic Counseling Programs in North America
Notes
Index

Über Autor(innen)

Stern, Alexandra Minna
Alexandra Minna Stern is Professor of Obstetrics and Gynecology, American Culture, History, and Women's Studies, and a core faculty member in the Science, Technology, and Society Program at the University of Michigan.