Supporting People with Dementia Using Pervasive Health Technologies

1. Auflage 2010
ISBN: 978-1-84882-551-2
Verlag: Springer-Verlag
Format: PDF
Kopierschutz: Adobe DRM (»Systemvoraussetzungen)

E-Book, Englisch, 226 Seiten

Information and communication technologies can provide new paradigms in healthcare provision. In particular, new Pervasive Healthcare technologies can revolutionise the dynamics of healthcare, enabling people to remain at home for longer, at lower costs to health and welfare organisations.

This book reveals how pervasive healthcare technologies can be designed in conjunction with users and carers, as well as exploring the application of novel methods and technologies.

Autoren/Hrsg.

Inhaltsverzeichnis

1;Foreword;6
2;Contents;8
3;Contributors;10
4;Part I Background;14
4.1;1 Supporting People with Dementia Using Pervasive Healthcare Technologies;15
4.1.1;1.1 Introduction;15
4.1.2;1.2 Why Select Mild Dementia?;16
4.1.3;1.3 The European Policy Landscape;18
4.1.3.1;1.3.1 Demographic Ageing;18
4.1.3.2;1.3.2 The Care Burden;19
4.1.3.3;1.3.3 European Policy Areas;19
4.1.4;1.4 Pervasive Healthcare Technology and Services;20
4.1.5;1.5 Background to the Research;20
4.1.6;1.6 The Role of the User in the Design Process;22
4.1.7;1.7 Pervasive Healthcare Technology;23
4.1.8;1.8 Evaluation and Assessment of Cognitive Prosthetics;23
4.1.9;1.9 The Way Ahead;24
4.1.10;References;25
4.2;2 Prevalence and Clinical Features of Dementia;27
4.2.1;2.1 Definition and Overview;27
4.2.2;2.2 Historical Background;28
4.2.3;2.3 Extent of Dementia;29
4.2.4;2.4 Health Economic Impact;29
4.2.5;2.5 Dementia Subtypes;30
4.2.6;2.6 Relationship Between Normal Ageing and Dementia;30
4.2.7;2.7 Risk Factors for Dementia;31
4.2.8;2.8 Burden of Illness for Patient and Carer;31
4.2.9;2.9 Management of Dementia;32
4.2.10;References;33
4.3;3 State of the Art in Electronic Assistive Technologies for People with Dementia;34
4.3.1;3.1 Introduction;34
4.3.2;3.2 Support for Memory;36
4.3.3;3.3 Support for Daily Life Activities;37
4.3.4;3.4 Support for Social Contacts;40
4.3.5;3.5 Enhancing Feeling of Safety;41
4.3.6;3.6 Conclusion;45
4.3.7;References;45
4.4;4 Review of ICT-Based Services for Identified Unmet Needs in People with Dementia;47
4.4.1;4.1 Introduction;48
4.4.2;4.2 Method;49
4.4.2.1;4.2.1 Selection Criteria;50
4.4.2.2;4.2.2 Search Procedure;51
4.4.2.3;4.2.3 Analysis;51
4.4.3;4.3 Results;52
4.4.3.1;4.3.1 Need for General and Personalized Information;52
4.4.3.1.1;4.3.1.1 Information on Dementia;52
4.4.3.1.2;4.3.1.2 Information on Service Offerings;52
4.4.3.1.3;4.3.1.3 Information on Legal and Financial Issues and on Care and Support Services;53
4.4.3.1.4;4.3.1.4 Information on Personal Condition, Care Appointments and Care Planning;53
4.4.3.2;4.3.2 Need for Support with Regard to Symptoms of Dementia;54
4.4.3.2.1;4.3.2.1 ICT Compensation for Disabilities Such as Memory Problems;54
4.4.3.2.2;4.3.2.2 ICT Supporting the Carer, Flexibly and Personalized, in Instrumental Care;56
4.4.3.2.3;4.3.2.3 ICT Support for People with Dementia and Carers with Regard to Behavioural and Psychological Changes and How to Cope with Them;57
4.4.3.2.4;4.3.2.4 Emotional Support for People with Dementia and Carers;58
4.4.3.3;4.3.3 Need for Social Contact and Company for the Person with Dementia;58
4.4.3.4;4.3.4 Need for Health Monitoring and Perceived Safety;60
4.4.4;4.4 Conclusion and Discussion;62
4.4.4.1;4.4.1 Available ICT-Based Services per Needs Area;62
4.4.4.2;4.4.2 Limitations of the Current Study;63
4.4.4.3;4.4.3 Societal Relevance;64
4.4.4.4;4.4.4 Technological Interest and Research Recommendations;65
4.4.5;References;66
4.5;5 Assistive Technologies and Issues Relating to Privacy, Ethics and Security;72
4.5.1;5.1 Introduction;72
4.5.2;5.2 Technology Options from a User Perspective;73
4.5.3;5.3 Ethics;74
4.5.4;5.4 Privacy;75
4.5.5;5.5 Security;76
4.5.6;5.6 Discussion on Ethical Practice and Technology Use;77
4.5.6.1;5.6.1 Explicitness, Legal and Procedural Context;78
4.5.6.2;5.6.2 Person-Centred Approach;79
4.5.6.3;5.6.3 Care Staff Training;79
4.5.6.4;5.6.4 Protection and Paternalism;79
4.5.6.5;5.6.5 Information, Demonstration and Individual Consent;80
4.5.7;5.7 Summary and Conclusions;81
4.5.8;5.8 Appendix: Checklists to Assist Using Technology with People Who Have Dementia;82
4.5.8.1;For Professionals and Field Test Personnel;82
4.5.8.2;For Developers;83
4.5.8.3;For Researchers;84
4.5.9;References;84
5;Part II The Role of the User in the Design Process;86
5.1;6 Identifying User Needs and the Participative Design Process;87
5.1.1;6.1 Introduction;88
5.1.2;6.2 Method;90
5.1.2.1;6.2.1 Design;90
5.1.2.2;6.2.2 Sample and Setting;90
5.1.2.3;6.2.3 Measurement;91
5.1.2.4;6.2.4 Procedure;91
5.1.2.5;6.2.5 Analysis;93
5.1.3;6.3 Results;93
5.1.3.1;6.3.1 Sample Characteristics;94
5.1.3.2;6.3.2 Met and Unmet Needs and Wishes of Persons with Dementia;94
5.1.3.2.1;6.3.2.1 Support for Memory;94
5.1.3.2.2;6.3.2.2 Support for Social Contacts;97
5.1.3.2.3;6.3.2.3 Support for Daily Activities;97
5.1.3.2.4;6.3.2.4 Feelings of Safety;98
5.1.3.3;6.3.3 Disabilities, Personal and Context Information Relevant for Developing ICT Solutions;98
5.1.3.4;6.3.4 Final Top Four List;98
5.1.4;6.4 Discussion and Conclusion;104
5.1.5;References;107
5.2;7 Managing the Transition from User Studies to Functional Requirements to Technical Specification;109
5.2.1;7.1 Introduction;109
5.2.2;7.2 Explaining the Concepts of FRs and TS;110
5.2.3;7.3 From URs to FRs: Reaching a Common Understanding;111
5.2.4;7.4 Completing the FRs;112
5.2.4.1;7.4.1 Presentation of the FRs;113
5.2.5;7.5 Translating the FRs to Technical Specs;113
5.2.6;7.6 Recommendations;116
5.2.6.1;7.6.1 Common Understanding of Future System Use;116
5.2.6.2;7.6.2 Abstract Technical Concepts;117
5.2.6.3;7.6.3 Central Role of FRs;118
5.2.6.4;7.6.4 The Initial Version of FRs;118
5.2.6.5;7.6.5 More General: Vehicles for Communication Are Crucial;118
5.2.6.6;7.6.6 One Coordinator for FRs;118
5.2.6.7;7.6.7 Iterative Multidisciplinary Process to FRs;118
5.2.6.8;7.6.8 Translation Process of FRs to TS;119
5.3;8 Dementia-Related and Other Factors to Be Taken into Account When Developing ICT Support for People with Dementia Lessons from Field Trials;120
5.3.1;8.1 Introduction;121
5.3.2;8.2 The People with Mild Dementia that Participated in the First Phase of the COGKNOW Project;122
5.3.2.1;8.2.1 Group Characteristics;122
5.3.2.2;8.2.2 Methods to Assess Disabilities and Other Relevant Features;123
5.3.2.3;8.2.3 Disabilities of Participants;124
5.3.2.4;8.2.4 Relevant Background Characteristics and Environmental Features;125
5.3.3;8.3 Functional Requirements Compensating for Disabilities and Personal and Environmental Factors;126
5.3.3.1;8.3.1 Supporting Memory;127
5.3.3.2;8.3.2 Supporting Social Contact;127
5.3.3.3;8.3.3 Supporting Activities in Daily Life;127
5.3.3.4;8.3.4 Supporting Feelings of Safety;128
5.3.4;8.4 Opinions on User Friendliness and Usefulness of the CDNv-1;128
5.3.5;8.5 Conclusions;131
5.3.6;References;133
6;Part III Pervasive Healthcare Technology;135
6.1;9 The Role of Context-Aware Computing in Support of People with Dementia;136
6.1.1;9.1 Introduction;136
6.1.2;9.2 Context-Aware Computing;137
6.1.3;9.3 Context Environments;139
6.1.4;9.4 Context-Driven Interaction;141
6.1.5;9.5 Towards Context Reasoning and Context Prediction;143
6.1.6;9.6 Context-Aware Computing in Support of People with Dementia;146
6.1.7;9.7 Conclusion;147
6.1.8;References;147
6.2;10 Prototyping Cognitive Prosthetics for People with Dementia;149
6.2.1;10.1 Introduction;149
6.2.2;10.2 Initial Requirements;150
6.2.3;10.3 System Design and Components;151
6.2.4;10.4 Stationary Device;152
6.2.5;10.5 Mobile Device;152
6.2.6;10.6 Sensor Network;152
6.2.7;10.7 Server;153
6.2.8;10.8 Methodology;153
6.2.9;10.9 Services;155
6.2.9.1;10.9.1 Remembering;156
6.2.9.2;10.9.2 Communication;160
6.2.9.3;10.9.3 Daily Activities;162
6.2.9.3.1;10.9.3.1 Listening to Music;162
6.2.9.3.2;10.9.3.2 Motivation Towards Eating;162
6.2.9.3.3;10.9.3.3 Assistance with Activities;163
6.2.9.3.4;10.9.3.4 Safety;164
6.2.9.3.5;10.9.3.5 Door Warning;165
6.2.9.3.6;10.9.3.6 Emergency Contact;165
6.2.9.3.7;10.9.3.7 Night-Time Wandering;166
6.2.10;10.10 Conclusions;166
6.2.11;References;167
6.3;11 ICT Interface Design for Ageing People and People with Dementia;168
6.3.1;11.1 Introduction;168
6.3.2;11.2 Ageing and Interface Design;171
6.3.2.1;11.2.1 Age-Related Interface Issues;172
6.3.2.2;11.2.2 Special Requirements Relating to Older People;174
6.3.2.3;11.2.3 Emerging Approaches;176
6.3.2.4;11.2.4 A Broader Technology-Related Perspective;178
6.3.2.5;11.2.5 Specific Interface Design Issues for People with Dementia;183
6.3.2.5.1;11.2.5.1 Dementia in User-Centred Design;183
6.3.2.5.2;11.2.5.2 Previous Research for ICT and People with Dementia;184
6.3.2.5.3;11.2.5.3 Development of GUIs (Graphical User Interfaces) for People with Dementia;185
6.3.3;11.3 Other Issues;185
6.3.4;11.4 Discussion and Conclusion;186
6.3.5;References;189
7;Part IV Evaluation and Assessment of Cognitive Prosthetics;192
7.1;12 Practical Issues when Planning for Field Trials;193
7.1.1;12.1 Introduction;193
7.1.2;12.2 Preparatory Phase;193
7.1.3;12.3 Actual Trial Phase;195
7.1.4;12.4 Post-test Procedure;196
7.1.5;12.5 Conclusions;196
7.2;13 Evaluation of Cognitive Prosthetics;198
7.2.1;13.1 Introduction;198
7.2.2;13.2 Evaluation Design;200
7.2.2.1;13.2.1 Settings;200
7.2.2.2;13.2.2 Procedures;200
7.2.2.3;13.2.3 Analysis;202
7.2.2.4;13.2.4 Participants;202
7.2.3;13.3 Experiences from the Evaluation;203
7.2.3.1;13.3.1 Interviewing the Person with Dementia;203
7.2.3.2;13.3.2 Interviewing the Family Member/Carer;204
7.2.3.3;13.3.3 Observations;204
7.2.3.4;13.3.4 In Situ Measurements;205
7.2.3.5;13.3.5 Experiences of the Analysis Process;205
7.2.4;13.4 Discussion;206
7.2.5;13.5 Conclusion;206
7.2.6;References;207
7.3;14 Measuring the Impact of Cognitive Prosthetics on the Daily Life of People with Dementia and Their Carers;208
7.3.1;14.1 Introduction;209
7.3.2;14.2 Aims of the COGKNOW Project and Potential Impact;209
7.3.3;14.3 Selection of Measuring Instruments to Evaluate the Impact of the CDN;210
7.3.3.1;14.3.1 General Considerations When Selecting Impact Measures;210
7.3.3.2;14.3.2 Considerations and Selection of Instruments in the COGKNOW Project;211
7.3.3.2.1;14.3.2.1 General Considerations in the COGKNOW Project;211
7.3.3.2.2;14.3.2.2 Primary General Impact Measures;212
7.3.3.2.3;14.3.2.3 Impact Measures for the Four Areas of Support;213
7.3.3.2.4;14.3.2.4 Secondary Impact Measures;214
7.3.3.2.5;14.3.2.5 Measurement Instruments to Describe the Test Population;214
7.3.4;14.4 Experiences with the (Impact) Measures in the First Cycle of the Project;215
7.3.5;14.5 Conclusion;215
7.3.6;Appendix 1: Experienced Autonomy;217
7.3.7;Appendix 2: Dementia Coping Questionnaire;218
7.3.8;References;220
7.4;15 Technology and Dementia: The Way Ahead;222
7.4.1;15.1 Introduction;223
7.4.2;15.2 What Current Seniors Tell Us About the Future;223
7.4.3;15.3 What Future Seniors Tell Us About the Future;225
7.4.4;15.4 An Idealized Future;226
7.4.5;15.5 The Future Is Almost Now;227
7.4.6;15.6 Realizing a Future of Ambient Home Technology for Seniors Person-Centered Considerations;229
7.4.7;15.7 Realizing a Future of Ambient Home Technology for Seniors Technology and System Transformations;231
7.4.8;References;234
8;Index;236