Barber | Autism in Nursing and Healthcare | Buch | 978-1-394-26610-4 | www.sack.de

Buch, Englisch, 240 Seiten, Format (B × H): 170 mm x 244 mm, Gewicht: 390 g

Barber

Autism in Nursing and Healthcare


1. Auflage 2025
ISBN: 978-1-394-26610-4
Verlag: Wiley

Buch, Englisch, 240 Seiten, Format (B × H): 170 mm x 244 mm, Gewicht: 390 g

ISBN: 978-1-394-26610-4
Verlag: Wiley


Understand the healthcare needs of autistic patients with this essential volume

Autism is a condition that directly affects as many as 2 million people in the United Kingdom, a figure which does not include family members and other loved ones. As most nurses, healthcare assistants, and other healthcare professionals will engage with autistic patients or service users at numerous points in their careers, the Health and Care Act 2022 requires healthcare professionals to be given autism training appropriate to their role. There is an urgent need for a publication which directly addresses this new training requirement and fulfills the learning needs of workers across the healthcare sector and beyond.

Autism in Nursing and Healthcare offers a solid grounding in the issues relevant to the care and support of autistic people. Viewing autism as a lifelong condition, this book offers chapters covering the full lifespan of the autistic person, with information on the role of nurses in both community and hospital settings. Appropriate for both formal and informal carers, it’s an indispensable resource for anyone with direct or indirect experience of autism. - Chapters on welfare benefits, sexuality, and discrimination against autistic people
- Detailed discussion of the 2009 Autism Act and related strategies
- Practical intervention strategies throughout

Autism in Nursing and Healthcare is ideal for pre-registration nursing students from all four nursing branches, those in post-registration professional development sessions, Nursing Associates and Healthcare Assistants, as well as those who work with autistic people (either as patients or colleagues) looking to better understand autism.

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Weitere Infos & Material


Preface xiii

Acknowledgements xiv

Chapter 1 Introduction 1

Purpose 2

Aims and Objectives 3

Chapter Overview 4

Conclusion 7

Key Points 7

Questions and Reflections 7

References 8

Chapter 2 What Is Autism? 9

Introduction 9

What Autism Is Not 10

What Is Autism? 10

Autism Myths 12

Autistic Prevalence 13

Mind Your Language 14

Conclusion 15

Key Points 15

Questions and Reflections 16

References 16

Chapter 3 A History of Autism 17

Introduction 17

Pre-History 18

History 19
1910–194019
1940–196019
1960–198020
1980–200021
2000–Today22

Post-History 23

Conclusion 24

Key Points 25

Questions and Reflections 25

References 25

Chapter 4 Autism in Girls and Women 27

Introduction 27

Prevalence 27

Why the Difference? 28

Experiences of Girls 29

Experiences of Women 30

How You Can Help 30

Conclusion 32

Key Points 33

Questions and Reflections 33

References 33

Chapter 5 Diagnostic Issues 35

Introduction 35

Current Diagnostic Criteria 36

Diagnostic Pathways 37

Diagnostic Tools 39

How You Can Help 40

Autism Diagnosis and Me 42

Conclusion 43

Key Points 43

Questions and Reflections 44

References 44

Chapter 6 Autism and Communication 46

Introduction 46

What Is Communication? 47

How Do Autistic People Communicate? 48

Communication Assessment Tools 50

How You Can Help Autistic People Communicate 51

Conclusion 53

Key Points 53

Questions and Reflections 53

References 54

Chapter 7 Autism and Sensory Issues 56

Introduction 57

What are Sensory Stimuli? 57

Sensory Impact in Those with an ASC 58

Sight 59

Hearing 59

Smell 60

Taste 60

Touch 61

Balance 62

Pain and Temperature 62

Impact on Nursing Interventions 63

Sight 64

Hearing 64

Smell 64

Taste 64

Touch 65

Balance 65

Pain and Temperature 65

Conclusion 65

Key Points 66

Reflective Questions 66

References 66

Chapter 8 Autistic Children (0–11) 67

Introduction 67

Diagnosis 67

Preschool 68

Primary School 70

Transitions 71

Conclusion 73

Key Points 73

Questions and Reflections 73

References 74

Chapter 9 Autistic Adolescents (11–20) 75

Introduction 75

What Is Adolescence? 75

Autism and Secondary Education 77

Adolescents and Health 78

Autism and Healthy Lifestyles 79

Transitions 81

Conclusion 82

Key Points 82

Questions and Reflections 82

References 83

Chapter 10 Autistic Adults 84

Introduction 84

Autistic Adults: 20–50 84

Autistic Adults: 50–70 89

Autistic Adults: 70+ 90

Conclusion 91

Key Points 91

Questions and Reflections 92

References 92

Chapter 11 Mental Health Issues and Autism 93

Introduction 93

What Is Mental Health? 93

Mental Health and Autism 95

Statistics 95

Causes 96

Helpful Interventions 97

Conclusion 99

Key Points 100

Questions and Reflections 100

References 100

Chapter 12 Physical Health Issues and Autism 103

Introduction 103

Autism and Physical Health 103

GP Practices and Community Health Centres 105

Dentists 105

A&E Departments 106

Outpatient Departments 107

On the Wards 108

Conclusions 109

Key Points 110

Questions and Reflections 110

References 110

Chapter 13 Person- Centred Planning, Interventions and Care 112

Introduction 112

What Is Person- Centred Planning and Care? 113

Twelve Activities of Daily Living 114

Maintaining a Safe Environment 116

Breathing 117

Mobilising 117

Communication 117

Eating and Drinking 118

Elimination 118

Washing and Dressing 118

Controlling Temperature 118

Working and Playing 119

Expressing Sexuality 119

Sleeping 119

Death 120

Conclusion 120

Key Points 120

Questions and Reflections 121

References 121

Chapter 14 Reasonable Adjustments 123

Introduction 123

What Are ‘Reasonable Adjustments’? 124

Reasonable Adjustments and the Autistic Patient 126

Practical Examples of Reasonable Adjustments 128

Conclusion 129

Key Points 129

Reflective Questions 130

References 130

Chapter 15 Nursing Interventions for Independent Adults 131

Introduction 131

What Do We Mean By Independent? 131

The Independent Autistic Person in a Hospital Environment 133

The Independent Autistic Person in a Community Environment 135

Conclusion 136

Key Points 137

Reflective Questions 137

References 137

Chapter 16 Nursing Interventions for Informal Carers 139

Introduction 139

What Is an Informal Carer? 140

Informal Carer Statistics 141

Informal Caring and the Autistic Child 142

Informal Caring and the Autistic Adult 143

The Autistic Person as Informal Carer 144

Informal Caring: The Role of the Nurse 145

Conclusion 146

Key Points 147

Reflective Questions 147

References 147

Resources 148

Chapter 17 Autism, Spirituality and Sexuality 149

Introduction 149

Spirituality 150

What Is Spirituality? 150

Autism and Spirituality 150

Sexuality 152

What Is Sexuality 152

Autism and Sexuality 153

Conclusion 155

Key Points 155

Reflective Questions 155

References 155

Chapter 18 The Autistic Colleague 157

Introduction 157

Prevalence of Autistic Colleagues 158

Lived Experiences of Autistic Colleagues 158

Reasonable Adjustments 159

Supporting Autistic Colleagues 161

Conclusion 163

Key Points 163

Reflective Questions 163

References 164

Chapter 19 Autism and Welfare Benefits 165

Introduction 165

Debates Around Welfare Benefits 165

Disability Living Allowance 166

What Is It? 166

What Is It Worth? 167

Claiming Criteria 167

How To Claim 167

Personal Independence Payment 167

What Is It? 167

What Is It Worth? 167

Claiming Criteria 168

How To Claim 168

Job Seekers Allowance 168

What Is It? 168

What Is It Worth? 169

Claiming Criteria 169

How To Claim 169

Carers Allowance 169

What Is It? 169

What Is It Worth? 170

Claiming Criteria 170

How To Claim 170

Attendance Allowance 170

What Is It? 170

What Is It Worth? 170

Claiming Criteria 171

How To Claim 171

Employment and Support Allowance 171

What Is It? 171

What Is It Worth? 171

Claiming Criteria 172

How To Claim 172

Universal Credit 172

What Is It? 172

What Is It Worth? 172

Claiming Criteria 172

How To Claim 173

Notes on the Role of the Nurse 173

Conclusion 174

Key Points 174

Reflective Questions 174

References 175

Chapter 20 Autism Discrimination 176

Introduction 176

What Is Discrimination? 177

Discrimination in Law 177

Disability Discrimination 178

Discrimination in Education 179

Discrimination in Health Care 180

Discrimination in the Workplace 181

Role of the Nurse 182

Conclusion 183

Key Points 184

Reflective Questions 184

References 184

Chapter 21 The Autism Act 2009 and Autism Strategies 187

Introduction 187

Autism Act (2009) 187

Autism Strategy (2010) 189

Autism Strategy 2023 191

Implications for Healthcare Practice 192

Autism (Early Identification) Bill (2024) 193

Conclusion 194

Key Points 194

Reflective Questions 195

References 195

Chapter 22 Decision- Making and Consent 197

Introduction 197

What Is Consent? 198

The Mental Capacity Act (2005) 199

Autism, Mental Capacity and Consent 201

The Role of the Nurse 202

Conclusion 203

Key Points 203

Reflective Questions 203

References 204

Chapter 23 Autism: An Anarchy Too Far? 205

Introduction 205

What Is Meant By Anarchy? 205

Autism as Anarchy? 206

Using Language 207

Looking Back 208

Looking Forward 209

Call to Action 209

Conclusion 210

Key Points 210

Reflective Questions 211

References 211

Glossary 213

Index 218


Christopher Barber is a registered learning disability nurse with 35 years nursing experience. As a proudly autistic individual, he is also working towards his PhD at Aberdeen University, focusing on the experiences of ordained, neurodivergent Anglican and Roman Catholic clergy. He is a published author of three books on autism and learning disabilities and a number of papers on various nursing, theological and spiritual issues. Chris Barber also serves as an NHS Trust governor, is an RCN activist, and serves on a number of journal editorial boards.



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