Touma Outcome Measures and Metrics in Systemic Lupus Erythematosus

1. Auflage 2021
ISBN: 978-3-030-73303-2
Verlag: Springer International Publishing
Format: PDF
Kopierschutz: 1 - PDF Watermark

E-Book, Englisch, 418 Seiten, eBook

Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact. 

This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. It also discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others.

Zielgruppe

Professional/practitioner

Autoren/Hrsg.

Touma, Zahi

Inhaltsverzeichnis

Introduction: Metrics and Psychometric PropertiesDomains Measured in Systemic LupusMeasuring Disease ActivityMeasuring DamageMeasurements in Lupus Clinical TrialsApplication of Measurements in Clinical PracticePatient-reported Outcomes in LupusHealth-related Quality of Life in LupusAssessment of Cognitive Function in LupusAssessment of Depression and Anxiety in LupusAssessment of Fatigue and Pain in LupusEmerging Concepts in Lupus: Sleep, Frailty, and OthersActivities and Participation for Patients with Lupus.

Über Autor(innen)

Zahi Touma, MD, PhD, FACP, FACR

Associate Professor of Medicine, University of Toronto

Clinician-Scientist, Rheumatology, University Health Network and Mount Sinai Hospital
Scientist, Krembil Research Institute

Cross-Appointed Faculty, Institute of Health Policy, Management and Evaluation

Associate Member, Institute of Medical Sciences

Adjunct Scientist, Institute for Work and Health 

Toronto, ON 

Canada